Sunday, January 31, 2010
A nice and warm and cozy seat just for me...
Saturday, January 30, 2010
Medical stuff...
I'm tired...
Chris is tired...
Ben is tired...
Katelyn is tired...
Maggie is tired...
I don't think Connor or JJ are tired though...
Last weekend I wrote about Ben still having the double ear infection and wheezing. I'll tell you, last weekend got really bad! There was quite a few times that I thought Ben would have to go to the hospital. We were giving him breathing treatments every two hours and sometimes we even had to do two in a row. Thank goodness on Sunday afternoon it calmed down some. He has had a couple of treatments a day instead of constant treatments.
It's been a tough week. He was supposed to have surgery today but unfortunately that did not happen. Because he has been wheezing on and off for a week now the anesthesiologist felt that it was too risky for Ben to be put to sleep and to be intubated. Although I am very glad that he has Ben's best interest and safety in mind I was sorely disappointed.
Poor Ben has been battling with ear infections for quite a while now and has been on antibiotics almost constantly. Because of this his mouth is full of thrush and until yesterday his bum was covered in a chemical rash (burn) and yeast rash from the yucky poops.
Thank God for oatmeal baths, triple paste, and Lotrimin. Talk about miracle workers! Sorry, got off the main topic for a minute.
I digress...
I took Ben to the pulmonologist on Thursday and we have upped his inhaled steroids so try and get his asthma in better control. Hopefully in two weeks it will be better controlled and he can have the surgery.
OK, moving on to Maggie.... She has had a cough for weeks now for which I have brought her to the doctor three separate times. The doctor thought that she was just getting cold after cold a couple of weeks ago when I brought her again. However, this week she spiked a temp of 102.9 so I brought her back in. The doctor now thinks maybe she has some type of sinus infection that may be causing her to cough. Mags is now on antibiotics and is feeling better but still has a nasty cough.
Maggie also had her 4 year old well child visit this week that went well. She is growing and thriving just as we would hope for. She couldn't get her shots because of being sick so we will go back for them. Also, she has some thing swollen in her nose so the doctor thinks she may have allergies, which could also be causing the cough. We will check on that in a few weeks.
Finally, on to Katelyn... She stayed home from school today because her asthma is really acting up too. Her peak flow numbers are down a bit so we are doing albuterol treatments with her too. She is having a hard time sleeping so that's tough on her. Hopefully she will pull out of it without having to go on the oral steroids but we do have them if needed.
And Connor, he is doing very well! Thank God!!!
So, as you can imagine, we are tired. So tired. I am not joking when I tell you that I actually pray for sleep! For now, we will take what we can get and try to remember that it could be so much worse...
Friday, January 29, 2010
Monday, January 25, 2010
Tid bits
Katelyn is doing very well. She is preparing to make her first Communion and just had her first Penance last weekend. She was very nervous but I think did well.
2nd grade is fun but she loves her days off!
She still plays outside as much as possible and when she is inside she can often be found with headphones on her head and JJ on her lap.
Maggie and Connor are often using their imaginations throughout the house. Aquariums in the bathroom, dinosaurs under the table, monster hunting in the basement and much more!!!
Friday, January 22, 2010
I hate asthma...
Ben started some wheezing last night, after two weeks of no wheezing, but it was very minor and not frequent. He has been pulling on his ears a lot more in the last two days as well. Tomorrow was supposed to be his last day on the antibiotics but we weren't sure they were working too well.
Any way, this morning he woke up with a TERRIBLE, knock your socks off, cough! I couldn't hear too much wheezing but didn't listen with the stethoscope (yeah, I have one). I did call first thing so I could have the doctor listen to him and check on his ears. We headed in for a 10:20 appointment. Here's the run-down...
He still has a double ear infection, sigh... I was really disappointed because he had been doing so well with his medicine and we didn't miss a single dose. Not to mention, it was a strong antibiotic that he was on.
He was wheezing, BIG TIME, sigh... The doctor wanted me to get him right home and start the breathing treatments and oral steroids. The good thing was that he wasn't showing any signs of distress.
His mouth is FULL of thrush, sigh... The worst I have ever seen it. Of course, he has been on so many antibiotics.
His bum has a HORRIBLE yeast rash, sigh... It looks just terrible and must feel just awful. Of course, he has been on so many antibiotics and has major yucky poops. We are putting the cream on it...
So he has had three breathing treatments, sigh... I don't think it is doing much other then making his heart race and his little body shake. His breathing is more rapid then it normally is. I don't think he is in any distress though so I will just wait it out at home with him. I hate this, it just sucks!
My stomach is a jumbled mess. I don't even want him in the other room tonight. I may get him and put him in my bed for the night. I don't think I will get much sleep either way, sigh...
I hate asthma!!!!!!!!!!!
Thursday, January 21, 2010
memories

Dear Katelyn,
I came across these pictures of you today and was instantly brought back to when you were just a baby.
You're adorable chubby cheeks and priceless expressions are things I will never forget!
In this picture you are wearing an outfit that your great grammy gave you and I just adored!
Monday, January 18, 2010
Maggie's party

While Nana took the girls to basketball Connor and I worked together to decorate the cup cakes and the house for Maggie's party.
It turned out to be a great day! Everyone had a good time and Maggie had a blast.

The actual birthday cake...
pizza
(side note: Look at the grin Ben has on his face, he totally knows he is not supposed to have that, LOL!)
Thursday, January 14, 2010
Happy birthday Maggie!


Wednesday, January 13, 2010
Here we go again...
*Last Sunday (over a week ago) he was diagnosed with a left ear infection, again.
*He had many breathing treatments over the week because of the almost constant wheezing.
*Last Thursday we went to the ENT and decided that tubes are in his near future. This is also the day he finished his round of antibiotics. His infection looks better but his left ear is still full of fluid.
*Monday he went to see the pulmonologist who diagnosed him with asthma. He is now Katelyn's asthma buddy and will be using flovent two times a day. It is through an inhaler and is taking us a while to get down.
*Tuesday we scheduled his surgery for February 5th. He will get tubes put in and possibly his adenoids taken out.
*Tuesday night was a nightmare with a lot of screaming and ear grabbing.
*Wednesday, today, he was diagnosed with a double ear infection. Double the "fun". He was put on a new antibiotic as well as some pain killing ear drops. I called and just about begged to get his surgery moved closer. They don't have anything at all sooner but will call if anything gets canceled and they can fit Ben in.
So, here we go again...
Tuesday, January 12, 2010
a heavy heart
A few months ago Neala's step-dad died fairly suddenly. He was so healthy up until about a week before he passed away. He was so much more then just a "step-dad" really and that title doesn't do justice for the role he played in her life. I can't remember off hand how long her mom, Leah, and Joe were married but I want to say it was over 20 years.
You see, thankfully Neala's mom and dad met, got married and had children or Neala wouldn't be here today. But, reality is that Joe was really her mom's soul mate. They were a team, fit together like the perfect puzzle. They were best friends, life mates.
And now, he's gone. She's here. She's not alone by any means, she has children and grandchildren, family and friends. But, she doesn't have Joe. I can't fathom how that must feel.
Quite some time ago Neala's grandmother, Leah's mom, was diagnosed with cancer. She was given a short time to live and has surpassed that amount of time many times over. Eight months ago she was given two months to live, and again, she is still here.
Sadly though, she is coming to the end of her fight. Her body is full of cancer now and although her mind is fully functioning her body is not. It is failing her.
So now Leah, who lost her soul mate just a few months ago, will be soon losing her mom. Her mom.
If you look up the meaning of "mom" you will basically find that it is the informal word for "mother". If you look up "mother" you will discover that it is a person who has borne children or who has children through adoption, step-mother, or mother-in-law. Really, you won't find a true meaning. Because, fact be known, there are just no words to really explain this word. Can you grasp what I am trying to say?
In just a few months this wonderful person has lost her husband and will soon lose her mom.
Her husband.
Her mom.
How does someone deal with such loss? I just can't grasp this, and today my heart is heavy with sadness for Leah.
Yes, I am sad for Neala because she is my best friend and her loss and soon to be loss is just terrible. Yet, it is her mom that my heart is just so heavy for today.
Monday, January 11, 2010
Maggie says...
She then handed me 43 cents. One quarter, one dime, one nickel, and three pennies...
I'll have to think about this... :o)
Saturday, January 9, 2010
Conversation with Connor
Connor: Why?
Me: Because it's really cold out. Can you please watch Ben for me?
Connor: What do I have to do?
Me: You just have to follow him around and keep him safe. Make sure he doesn't get anything that can hurt him.
Connor: What if he gets a saw?
Me: Well, I don't think you have to worry about that because we don't have any saws up here.
Connor: But, what if he does get a saw, I won't be able to take it away from him because I'm not allowed to touch saws?
Me: I really don't think you need to worry about that honey, there are no saws up here and I will only be a few seconds.
Connor: Ok
Fast forward to today.......... The conversation goes almost the same but changes a bit at the end. The end went like this...
Connor: Ok, there aren't any saws up here but there are sharp knives, what if he gets one of those?
Me: Well, he can't reach the sharp knives, but why don't I just bring him with me this time...
Connor: OK
LOL, kids...
Friday, January 8, 2010
swim lesson, pet store, and ear doctor
In the past we have done swim lessons at our town pool during the summer but we decided to try something new. (Actually, Katelyn is the only one who has had swim lessons. It was too cold and too early for Connor and Maggie was too young even though she was very ready.)
I really wasn't sure how it would go. They are in the same class so I was concerned that if one (Connor) had a difficult time then the other (Maggie) would play off him and also have a difficult time. I did not need to be worried one bit!
They did WONDERFUL! They went right into the water, listened, and paid attention. They both cooperated fully and tried everything they were supposed to. I am so proud, super proud, of them both. The only downfall is that we have to wait a whole week for another lesson as they wanted to go back today!
After the lesson we went to the sports store to buy some new goggles for the "swim lesson champs"...
Then we got to walk next door to one of their most favorite places ever, the pet store...
Where Ben just loved looking at all the fish. It is great because there is just fish tank after fish tank right on his level. He talked to them, pointed at them, and just giggled like crazy at them!
The highlight of the trip for Connor and Maggie was the ferret.
Connor kept asking if we could keep him because- "Look Mommy, he loves me. I am his favorite person!" Sorry buddy, no ferrets for us.
After the pet store I dropped Connor off at school, Maggie off at Auntie's, and took Ben to the ear specialist.
It has been decided that he will get tubes put in. His left ear doesn't look infected anymore but is full of fluid. We haven't set up the surgery date yet but it will be very soon. Chris and I feel very strongly that this is the right decision, but it is surgery and nerve-wracking! While Ben is sleeping the doctor is also going to take a good look at his adenoids and decide whether those should come out.
One major player in this whole thing though, is that Ben can not be wheezing when it is time for surgery. If he is then we will have to put off the surgery. We go on Monday to the pulmonoligist so hopefully we will have a game plan for that too. On a positive note-he didn't need any breathing treatments yesterday!
Thursday, January 7, 2010
Christmas.... Finally!
Christmas morning was very exciting when we discovered that Santa came while we were all snug in our beds...

He brought the kids just what they asked for. A car for Ben, a baby doll for Maggie, a bug vacuum for Connor, and some stuff for JJ for Katelyn!

Wednesday, January 6, 2010
Tid-bits on Ben 2!
He looks so grown up with his haircut.
I have no pictures of the actual haircut though. It was a last minute decision that Chris made when he was out with Ben so I wasn't there :o( He did bring home some hair though! :o)
And, since you know how obsessed I am with stripes, I had to take many pictures of him looking so cute in this adorable outfit that he got from Nana....
Tuesday, January 5, 2010
Tid-bits on Ben
First off, I am seriously obsessed with putting stripes on this baby! I can't help it, it's just so stinkin cute!
Moving on....
Monday, January 4, 2010
My night
I finally fell asleep at 10:30. Even though I have been getting terrible sleep lately I can't seem to fall asleep when bed time comes...
Ben woke up at 12:00.
Katelyn woke up at 1.
Maggie woke up at 1:24.
Ben continued to cry out in his sleep every few minutes.
Ben settled down at about 1:45.
Ben woke up at 3.
He was up from 3-4. I gave him motrin, he screamed and spit it out...
I crawled back in bed at 4 with my mind racing, then finally fell back to sleep after 5.
At 7:17 I jumped out of bed because Katelyn needs to get on the bus. She was/is still sleeping and I didn't have the heart to wake her because she also had a bad night. Hopefully she is feeling ok and will just go to school late.
On the agenda for today.... Breakfast, dropping kids off at school one at a time, errands, picking up Maggie, Meeting Katelyn and Connor at the bus stop, bringing Katelyn to the dentist, picking up Tylenol suppositories for Ben, making dinner, and finally crawling back in bed and hoping for a better night!!!
However, I will still be thanking God for my wonderful life and the inventor of crockpots!!!
Sunday, January 3, 2010
Tired Mom...
I'm tired...
Nights have been terrible...
Maggie's been having some bad nights...
Ben's been having mostly bad nights...
Crying...
Wheezing...
Retracting...
Albuterol breathing treatments...
Still some wheezing...
No more retracting...
Albuterol induced shakes...
Restlessness...
No more then 2 1/2 hour stretches of sleep for many days...
Medicine...
Spitting out medicine...
Screaming...
Boogie sucking...
Saline nebulizer treatments...
Ear infection...
Antibiotics...
Cranky baby...
Tired Mom...
I know, it could be worse.
But, I'm tired...
Saturday, January 2, 2010
Fun day with friends...
It was a fun day with friends for sure!!!
Please note- Taking pictures of my other monkeys while keeping a constant eye on Ben is quite challenging, therefore there are not as many as I would have liked. Oh, that and my battery was just about dead...

